DEBRA exists to provide community care and support services to improve quality of life for people living with all types of inherited and acquired epidermolysis bullosa (EB). We also fund pioneering research to find effective treatments for all types of inherited EB.

From discovering the first EB genes to funding the first clinical trials in gene therapy and drug repurposing, we have played a pivotal role in EB research globally and have been responsible for making significant progress in advancing diagnosis, treatment, and daily management of EB.

We are committed to making sure that every person living with EB in the UK, their families, and carers get the vital and wide-ranging support they need.